Pete Frates honored by NCAA

Pete Frates honored by NCAA

The Massachusetts man who inspired the Ice Bucket Challenge that's raised millions of dollars nationwide for ALS research is being honored at his home.

The NCAA hand-delivered an award to Pete Frates, the former Boston College baseball captain who touched off the national craze.

'Gleason,' an NFL story of heroism

'Gleason,' an NFL story of heroism

The former New Orleans Saints star, Steve Gleason, 39, is the subject of "Gleason," a film by the documentary veteran Clay Tweel that has been emptying packs of tissues on the film-festival circuit ahead of its release this summer by Amazon and "Spotlight" distributor Open Road. At a moment when many sports-centric tales are focused on off-field misdeeds or institutional delinquency, "Gleason" offers the opposite: a man of uncommon spiritual and psychological depth.

In select theaters July 29.

Children of parents with ALS get support, counseling at Camp Hope Loves Company

Children of parents with ALS get support, counseling at Camp Hope Loves Company

Just like many other camps, Hope Loves Company gives kids the chance to sleep in log cabins, eat in mess halls, play outdoors and spend hours developing lasting friendships.

But unlike most other places, these campers also pick up strategies for coping with the stress that comes from taking care of parents or other family members with amyotrophic lateral sclerosis, also known as ALS or Lou Gehrig's disease.

Man with ALS pens moving "Note to Self"

When Chris Rosati was 39 years old and expecting his second child, he received the unimaginable news that he had ALS. On average, the life expectancy after diagnosis of ALS is three years. But today, five and a half years later, Chris writes -- with the help of his computer as his voice -- a moving "Note to Self" about his decision to dedicate his remaining days to making other people happy.

'Gleason' Movie Trailer

In select theaters July 29. The hit documentary from the 2016 Sundance Film Festival goes inside the life of Steve Gleason, the former New Orleans Saints defensive back who, at the age of 34, was diagnosed with ALS and given a life expectancy of two to five years. Learn more at gleasonmovie.com.

Kevin Turner Tribute 1969-2016

Kevin Turner was the star fullback for the Alabama Crimson Tide and he played in the NFL for the Patriots and Eagles until 1999. In May 2010, Kevin was diagnosed with Amyotrophic Lateral Sclerosis (ALS), also referred to as Lou Gehrig's disease, and after his tireless battle, sadly we lost Kevin on March 24th, 2016.

Nancy Frates: Why my family started the ALS Ice Bucket Challenge—the rest is history

When 27-year-old Pete Frates injured his wrist in a baseball game, he got an unexpected diagnosis: it wasn't a broken bone, it was ALS. Better known as Lou Gehrig's disease, ALS causes paralysis and death-there is no cure. And still, Pete saw an opportunity to drive awareness about the disease.

From CNN Impact Your World: Time to Talk ALS

From CNN Impact Your World, "Time to Talk ALS" published on December 8, 2014. CNN catches up with Anthony Carbajal, whose Ice Bucket Challenge video went viral after he shared what it is like to live with ALS. The piece also highlights the Institute's Precision Medicine Program for ALS.